Overview

Patients are at the heart of our mission. WP5 ensures that genomic medicine is developed ethically and transparently by integrating the voices of patients and the public.

Key Objectives

• PPIE Integration: Embedding patient perspectives into high-level regulatory decision-making.
• Clear Communication: Developing utility-focused patient information leaflets (PILs) for genomic tests.
• Ethical Oversight: Evaluating the impact of direct-to-consumer (DTC) testing on patients.

Featured Resources

• NHS England’s Genomics Education Programme

Leads